INSTITUTIONS, CHAT ROOMS & LINKS

Chat Rooms

BIAUSA Chat Room! New! Thanks to the great folks at tbichat, the Brain Injury Association USA now has it's own java-based chat room.
TBI Chat Room Homepage A home page and chatroom for survivors, caregivers and friends. Gallery with 160+ stories & pictures, poems, discussion board, birthday lists and more. You can also go directly to their Java Chatroom.

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U.S.A. Brain Injury Associations

Brain Injury Association of ALABAMA
Brain Injury Association of ALASKA
Brain Injury Association of ARIZONA
Brain Injury Association of ARKANSAS
Brain Injury Association of CALIFORNIA
Brain Injury Association of COLORADO
Brain Injury Association of CONNECTICUT
Brain Injury Association of DELAWARE
Brain Injury Association of FLORIDA
Brain Injury Association of GEORGIA
Brain Injury Association of HAWAII
Brain Injury Association of ILLINOIS
Brain Injury Association of  INDIANA
Brain Injury Association of KANSAS
Brain Injury Association of KENTUCKY
Brain Injury Association of MAINE
Brain Injury Association of MARYLAND
Brain Injury Association of MASSACHUSETTS
Brain Injury Association of MICHIGAN
Brain Injury Association of MINNESOTA
Brain Injury Association of MISSISSIPPI
Brain Injury Association of MISSOURI
Brain Injury Association of MONTANA
Brain Injury Association of NEBRASKA
Brain Injury Association of NEW HAMPSHIRE
Brain Injury Association of NEW JERSEY
Brain Injury Association of NEW YORK STATE
Brain Injury Association of NORTH CAROLINA
Brain Injury Association of OHIO ( under construction )
Brain Injury Association of OKLAHOMA
Brain Injury Association of OREGON
EASTERN PENNSYLVANIA Contact for BIA
Brain Injury Association of RHODE ISLAND
Brain Injury Association of TENNESSEE
Brain Injury Association of TEXAS
Brain Injury Association of UTAH
Brain Injury Association of VIRGINIA
VERMONT Contact for Brain Injury Association
Brain Injury Association of WASHINGTON

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International Brain Injury Associations

Kurhus - a rehabilitation program located in Dianalund, Denmark.
Injuries Australia - Provides a consumer voice for injury prevention and rehabilitation in Australia.
Disability World - Extensive international resources/links lists among other things, headquartered in Scotland.
Brain Injury Association of Alberta, Canada
The Perspectives Network (TPN). An extensive lists of resources including an excellent FAQ page about TBI/ABI printed in no less then NINE DIFFERENT LANGUAGES.
Headway Victoria. An Australian page that's getting off the ground. Mostly local stuff, but has a Publications List that should grow
Headway, Queensland, Inc. - Brain Injury Association of Queensland, Australia
H2000TBI & Brain - Trauma Cranico in Italy (mostly in Italian)
BIAN Brain Injury Association of Nipissing - Canada
Waikato Head Injury Society - New Zealand
Ontario Brain Injury Association
Saskatchewan Head Injury Association
The Brain Injury Association of New Zealand

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Other Brain Injury Related Organizations

Recovery Awareness Foundation -- a small group there to assist you in your time of need.
NASHIA -- National Association of State Head Injury Administrators, headquartered in Columbia, MO
Brian Bloodworth Stroke & Head Injury Research Foundation, Inc. -- Read about their hard work and dedication to persons with brain and stroke injury.
Northern Virginia Brain Injury Assn., a chapter of BIA of Virginia Web Site: www.nvbia.org. We also provide services to the metropolitan Washington, DC area
CDC - Centers for Disease Control, and their SafeUSA section.
Alabama Head Injury Foundation
NARPPS: National Association of Rehabilitation Professionals in the Private Sector.
The Brain Injury Society Serving brain injured individuals and their families.
TBI Model Systems Project Developing and demonstrating a model system of care for persons with TBI. Good links and Reference material.
RehabNET NorthEast U.S.
Think First Foundation .. Nation Brain and Spinal Cord Injury Prevention Program.

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Persons with brain injury WWW Pages

Brian's Brain -- good information for people wanting to learn more about TBI -- graphics-intense.
Harold Kennel Information Page -- provides weekly updates and inspiration to others in similar situations "Care Givers Survival Guide" -- this book can be purchased here.
TBI Social Network -- A support group for recovering TBI survivors and their caregivers based in Southern California.
Infinity & Beyond! This page tells the story of an adventurous group of people who have been studying astronomy and using the internet to control the Mt. Wilson Observatory 25" research telescope to take pictures of distant galaxies. The word "Limitation" is not in their vocabulary.
Dr. Claudia L. Osborn now has a web site! http://www.claudiaosborn.com "Locked inside a brain-injured head looking out at a challenging world is the premise of Over My Head, an extraordinary autobiography that describes the rebuilding of a shattered self." A must-read for all of us, whether involved with brain injury or not - this is a great read.
"My New Life" - Book about brain injury, written by a California man who sustained a TBI in work-related incident.
Cleveland Chapter of the Ohio Brain Injury Association.
The Brain Injury Information Network (formerly John & Clara Lyon's page) ( The prime source for most of the links you see here - a great site!)
TBI Chat Room Homepage A homepage and chatroom for survivors, caregivers, and friends. Gallery with 160+ stories & pictures, poems, discussion board, birthday lists and more. You can also go directly to their Java Chatroom.
Growing Through It: Art workshops designed to support individual healing and personal growth. A very cool place to visit. Submit your writings or your artwork for possible inclusion in their "Visitor's Gallery".
Head Injury Awareness Foundation: Resources for Families & Victims.
Linda Hunt Linda is a resident of Ontario, Canada.
Bear's Cave ... Everyone knows her as "Bear" - pay her a visit!
CAMPC Family Page ... Great People, Nice Page!
K. Rose Cuno-Stoeffler's New Beginnings SOBI (Survivors Of Brain Injuries)
Judith Kuster's Home Page .. Deals mainly with Communications Disorders, speech/language, hearing and stuttering.
Marti Taylor, a survivor, has set up an interesting WWW page on Prodigy. You can email Marti at Prodigy.
Michael Gagnon .. Home Page, New Brunswick Canada.
Jim Lubin's Eskimo North Home Page Lots of links for TBI and Disabilities in general.
Chaz's Page
BRAIN INJURY CONNECTION NEWSLETTER ... Connecting survivors, caregivers, providers, and the community at large.This section resides in TBIHELP.COM which is a person with brain injury operated website whose mission is to provide information, resources, networking and advocacy services to persons with brain injury and their familes -- from the perspectives of those of us who have walked the walk.
TRANSITIONAL ABILITIES SYSTEM
Rev. Paul Webb's Head to Head magazine. Survivor's and caregiver's information from a Christian perspective
Steve Drake's ...Home Page is not really about TBI, it's about Hydrocephalus (Water on the Brain). He has links to the Hydrocephalus Association also to the HYCEPH-L, a Hydrocephalus E-mail support mailing list.
Oklahoma City Support Group (new link 5/00)
Thrivenet An unusual site with encouraging monthly stories about persons with brain injury in every catagory. Site developed by Al Siebert, Ph.D, author of "The Survivor Personality".

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The Waiting Room

Known as "The Waiting Room", http://www.waiting.com is a good starting point when anyone gets that "Call" from the hospital about a loved one being in a coma. A rich resource put together by someone who's "Been There".

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Brain Injury - General information

The Brain Injury Information Network (formerly John & Clara Lyon's page) (The prime source for most of the links you see here - a great site with lots of features!)
Ready, Willing, Enable! -- A unique television program that empowers people with disabilities to live more independently.
Art Therapy -- A graphics-intense web site full of information on art therapy -- created by person with a brain injury.
Knowledge Exchange Network -- A good government web site offering a wealth of information about mental health.
Healthlinkusa -- A very good search engine for a variety of health issues, including traumatic brain injury.
Rexjack.com -- High performance clothing and accessories for persons with disabilities.
Brain Injury Quarterly News Letter Home Page A publication of the University of Washington, Dept. of Rehabilitation Medicine
TBIGUIDE An on-line book describing brain injury in everyday language by Dr. Glen Johnson, a Michigan based neuropsychologist. This is a great starting place if you're new to the subject of brain injury.
The Perspectives Network (TPN). Contains extensive lists of resources including an excellent FAQ page about TBI/ABI in 10 LANGUAGES including Chinese, Danish, Dutch, French, German, Greek, Italian, Norwegian, and Spanish!.
Medicine Net's Pharmacy: An alphabetized listing of drug descriptions/information is available at this site. When you arrive, click the "Medications" button.
Head Injury Awareness Foundation: Resources for Families & Victims.
What You Should Know About ECT Electroconvulsive Therapy (shock treatment) and persons with brain injury page - presented by the Committee for Truth in Psychiatry.
Brain Injury Information Page Great page for information and law issues
Coping with brain injury
BrainMap Effects of damage to specific areas of the brain.
Brain Injury Law Office Law and other great info..
The NeuroTrauma Law Nexus ..Great resource for TBI and the Law.
Traumatic Brain Injury: Proving a Lifetime Disability
Brain Injury Connection .. Connecting survivors, caregivers, providers, and the community at large.
Mainstream Magazine On-Line
Journal of Cognitive Rehabilitation - brain injury, head injury, stroke
Virtual Hospital Lots of Information on brain injuries.
The ABI/TBI Information Project .. This is a Brain Injury Support Group via an E-Mail Mailing list. This link contains a form for subscribing to the TBI-SPRT List. If you or a family member has a brain injury I strongly recommend joining this list. If your browser has News capabilities, you may want to check out bit.listserv.tbi-support to read some of the messages that originate from this list.
Untangling the Web - find Disability-Related Information Answering the Question, Where can I go to find Disability-Related Information?
The Whole Brain Atlas from Harvard Medical.
Mass General Hospital/Harvard Neurosurgery: Guide for Medical Students
Virtual Medical Center - Martindale's Health Science Guide
Americans with Disabilities Act Document Center
University of Maryland Drug Information
disABILITY Resources on the Internet
Articles and Software
Electronic Journals and Periodicals in Psychology and Related Fields

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International Languages

http://traumacranien.org - Brain injury information and links in French.
http://empresas.mundivia.es/braincenter/ A great TBI site for our Spanish speaking friends and neighbors.
The Perspectives Network (TPN). Contains extensive lists of resources including an excellent FAQ page about TBI/ABI in 10 LANGUAGES including Chinese, Danish, Dutch, French, German, Greek, Italian, Norwegian, and Spanish!
Para traducir cualquier paginacion en este sitio, usted puede utilizar el programa del traductor en Alta Vista: http://babelfish.altavista.com
To translate any page on this web site, you may use Babelfish by Alta Vista just by entering the current page into: http://babelfish.altavista.com

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Professional and /or Rehabilitation/ Cognitive sites

Rainbow Rehabilitation Centers -- Provides services for people with brain injuries -- located in Ypsilanti, MI.
Centers for Neuro-Rehabilitation -- provides rehab. treatment for wide range of neurological disorders--offices in Maryland and Virginia
Bluestone & Associates -- speech therapist/clinical computer consultant based in Easton, MA.
NeuroRehabilitation and Neuropsychological Services, P.C. -- Offers evaluation and treatment services to individuals with TBI in New York Metro region.
NeuroWorld: A Global Portal to Neurology, Neurosurgery, Neuroradiology and More.
MedPrompt: A simple concept using an alpha numeric pager designed to equip multiple medication users with a customized electronic notification system reminding subscribers when, which and how much medication to take.
Neurorehab: Head Injury Rehabilitation Services in Southern California.
Healthhill: An accredited pediatric specialty (chronic illness/disability) hospital in Cleveland .
Dynamic Rehab, Inc. - Uses videos to provide workshops and presentations as a means of providing that spark of desire to "come back" from TBI
The Saddle: A long-term residential facility for motivated, self-reliant adults with brain injuries, located in Apple Valley, CA
University of Miami (FL) School of Medicine, Dept. of Neurological Surgery - specializing in management of patients with surgically treatable neurological diseases.
ReMed Real-Life Rehabilitation - Residential and Outpatient Programs for people with acquired brain injury and neurological disorders, located in eastern and western Pennsylvania.
Oregon Health Sciences University, Division of Neurological Surgery - located in Portland, Ore., specializes in treatment of Parkinson's Disease, Neurotrauma, Spinal Cord Injuries, Pain, Epilepsy and Cerebrovascular Disorders.
Neuro-Optometric Rehabilitation Association International, Inc. - Purpose is to expand awareness about the visual problems and needs of physically disabled persons and those who have had a TBI.
South Shore Neurologic Association - comprehensive neurologic care for clinical evaluation, diagnostic testing, etc. for numerous neurologic disorders located in Suffolk County, New York.
The WE MOVE Web Site: A comprehensive resource for movement disorder information and a hub for movement disorder activities on the Web. They are dedicated to increasing awareness of neurologic movement disorders. Their goal is to make early diagnosis, up-to-date treatment, and patient support a reality for all people living with movement disorders. If you are a health care professional or a person with a movement disorder, visit Wemove often for the latest information on treatment, conferences, educational materials, and support groups.
Walter Reed Army Hospital, Department of Neurosurgery
Mediprime: A Company that sells undergarments and other incontinence protection products, based in Los Angeles
NORA, the Neuro-Optometric Rehabilitation Association's international website has a wealth of information on the vision problems associated with brain injury. They are co-publishers of the Journal of Low Vision and Neuro-Optometric Rehabilitation and they welcome membership participation by professionals, students, patients and their families.
Craig Hospital in Denver has long been recognized as a national center of excellence in the specialty rehabilitation and research for patients with spinal cord and brain injury. Craig has treated more than 22,000 patients since 1956--more than any other single facility in the world--and has been rated every year in the Top Ten Rehabilitation Hospitals by U.S. News and World Report since the ratings began.
L&A Publishing - A terrific selection of tips, cards & booklets on brain injury in children and adolescents authored by Marilyn Lash
http://www.getagripgolf.com A unique program based in Phoenix, AZ designed to teach golf to persons with brain injury.
Anna Jaques Hospital -- Newburyport, Massachusetts.
Health Helper This site is posted by Dr. Diane Roberts Stoler, Ed.D, co-author of the book, "Coping with Mild Traumatic Brain Injury: A Guide to Living with the Problems Associated with Brain Trauma" - This is the first practical guide for the layperson and professional on coping with traumatic brain injury.
The Centre for Neuro Skills CNS is a for-profit organization. Their site contains a page with guidelines for choosing a rehabilitation facility in a worksheet format.
Head Injury Rehabilitation Services ...California-based pioneers of the "Program-Without-Walls" recovery concept.
The Shepherd Center -- Atlanta, Georgia
N.C.I.L. North Country Independent Living, Inc. A "Residential-based rehab provider" located in New Hampshire.
Neuroadvance A for-profit TBI/ABI rehabilitation company with offices in Massachusetts and Pennsylvania.
NEURX Computer assisted cognitive remediation programs for help in recovery after a traumatic brain injury.
Transitional Learning Community in Galveston Texas - a non-profit rehabilitation facility, known locally as TLC.
Journal of Cognitive Rehabilitation brain injury head injury stroke
Mainstream Magazine On-Line .. A magazine billed as "for the abled disabled".
Home Page for EEG Spectrum, Inc. - Biofeedback - teaching an old brain new tricks.
BRAIN BOOK® Life Management System - A home-based cognitive skills building program based on learning compensatory strategies.
American Academy of Neurology
Cognitive Science at Birmingham
Trace Research and Development Center
Charlotte Institute of Rehabilitation
SUNY at Buffalo: Center for Cognitive Science
Dennis M. Feeney Ph.D. In association with Neurosurgery at the University of New Mexico
Behavioral Medicine Associates, Inc. Has some great info on many subjects related to TBI, one good page on MTBI is real good.
Cheshire Homes Society currently operates four residential programs providing a varietyof support: transitional rehabilitation, long term specialized care and semi-independent living apartments and supported living.
Learning Services Corporation They provide long-term supported living programs and services for people with TBI.
Farm Hill Residential Care for the brain inured.
Dr. Appel Ph.D. Neuropsychologist, great page and info.
Dennis M. Feeney Ph.D. Home Page. In association with Neurosurgery at U of N.M.

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Technical / Professional Articles

REHAB BRIEF: Community Integration of Individuals with Traumatic Brain Injury
JHU Article: Brain Injury Provides Strong Evidence for Mind's Language Machinery

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Prevention

National Organization for Youth Safety (NOYS)
SAFE USA - A division of the Center for Disease Control
Operation Safe Site -- some good information regarding the prevention of brain injury caused by falls in the workplace.
Emergency Medical Services for Children
The Bike Hub - The National Bike Safety Network
L&A Publishing - Specializing in publications about brain injury
Snell Foundation An wealth of helmet safety information and research data
Bicycle Helmet Effectiveness
It should be a law (sometimes)(July 10, 1995) -Bicycle Riders who say they...

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Neurotrauma and the Legal Profession

David Goldin -- Specializing in brain injury, based in San Diego
Nolan Law Group -- A Chicago-based firm specializing in TBI/ABI litigation
Kenneth L. Shigley -- Atlanta, Georgia attorney specializing in TBI cases
Balkin & Doran - Attorneys representing those with brain and other injuries.
Sheri Abrams: A lawyer specializing in Social Security Disability Law in Virginia/D.C./Maryland.
Robert Altman, Attorney at Law. Atlanta Georgia, Personal Injury/TBI specialist.
Law -- Traumatic Brain Injury -- Search our Personal Injury Resources
The Legal Information Institute from Cornell Law School
Traumatic Brain Injury: Evaluation and Litigation
The Traumatically Brain Injured and the Law
Traumatic Brain Injury: Proving a Lifetime DisabilityBrain Injury
Johnson Law Firm Gordon S. Johnson, Atty.
Great TBI info. The NeuroTrauma Law Nexus
The Consumer Law Page
Law Offices of Herbert Monheit Covering Brain Injury and many other types of litigation.

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Disability Legislation And Related Law

Many of the following links point to information concerning the Americans With Disabilities Act (ADA). Other sites point to information that may be helpful to those dealing with disability-related issues.

U.S. Department of Education's Office of Special Education Programs -- let your voice be heard!
Center for Health Care Strategies: The Center for Health Care Strategies, Inc. (CHCS) was established in1995 as a non-profit, non-partisan policy and resource center affiliated with the Woodrow Wilson School of Public and International Affairs at Princeton University. CHCS serves as the National Program Office for two national initiatives of the Robert Wood Johnson Foundation (Medicaid Managed Care Program and Building Health Systems for People with Chronic Illnesses) and one initiative of the Annie E. Casey Foundation (Children's Issues in Managed Care).
Americans with Disabilities Act Document Center links toward the Job Accommodations Network.
ADA Information Center On-Line from the Kansas Commission of Disability Concerns
The World Wide Web Virtual Library: Law from the Indiana University School of Law - Bloomington
Disability Legal Info

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Epilepsy / Seizure Information

James Whitlock, M.D .. Epilepsy / Seizure Info & FAQ's

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Employment

The Work Site -- From the Social Security Administration, hard to find information in one, easy-access location.
WORKING EFFECTIVELY WITH EMPLOYEES WHO HAVE SUSTAINED A BRAIN INJURY
Opportunities Unlimited of Niagara - largest not-for-profit organization in Niagara County (NY) providing programs and services to people with mental retardation or developmental disabilities.

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Medical Case Management

C.Q.I Health Care Management Services
Individual Case Management Association-- 1-800-664-2620
Rehabilitation Case Management Consultants-- 1-800-968-4087
Center for Health Care Strategies: The Center for Health Care Strategies, Inc. (CHCS) was established in1995 as a non-profit, non-partisan policy and resource center affiliated with the Woodrow Wilson School of Public and International Affairs at Princeton University. CHCS serves as the National Program Office for two national initiatives of the Robert Wood Johnson Foundation (Medicaid Managed Care Program and Building Health Systems for People with Chronic Illnesses) and one initiative of the Annie E. Casey Foundation (Children's Issues in Managed Care).

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TBI Related Organizations

The American Academy of Neurological and Orthopaedic Surgeons -- new topics featured on a monthly basis.
Research and Training Center on Community Integration of Individuals with Traumatic Brain Injury -- a lot of resources here.
Acoustic Neuroma Seattle: Extensive information and resources on acoustic neuroma (aka vestibular schwannoma), a benign cranial nerve tumor. Lots of information and support, including links to all known acoustic neuroma websites.
When life changes - HalfthePlanet.com: The Disability Source: information, ideas, products and services for the entire disability community, including people with disabilities, their families, friends, educators, legislators, and advocates.
National Family Caregivers Association
Consortium for Citizens with Disabilities
National Organization for Rare Disorders, Inc. - Large databases of foundations, organizations, support groups, products and services relating to wide range of rare disorders, located in Connecticut.
A UK based general site for people looking for help with disability issues; site seeks to provide insight into world of disability.
Rest Ministries, Inc. - A non-profit Christian organization for people who live with chronic illness or pain.
The World's Healthcare Village Network - huge healthcare information database.
M.A.D.D. Mothers Against Drunk Drivers Home Page. It does have a very nice Brain Injury informational Page!
Pima Prevention Partnership - A Tucson, AZ website about disabilities and substance abuse.
INDIE ..The Integraded Network of Disability Information and Education. A comprehensive one-stop resources for products, services, and information for the world wide disability community.
Mental Health Com This is a huge site which has lots of info on mental health and info related to brain injuries.
The National Institute on Life Planning For Persons with Disabilities, Inc. is a non-profit with a site for general disability information that looks pretty good.
National Brain Aneurysm Foundation
Resources Guide Spinal Cord Injury, Stroke and Paralysis.
American Association of Neuroscience Nurses Home Page.
A page with many neuropsych links is at Neuropsychology Central.
Social Security Administration Home Page.
American Brain Tumor Association Homepage
Association for Conductive Education

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Education

Coastline Community College -- offers a cognitive retraining program for individuals with ABI, among other things.
PoinTIS -- Point of Care, Team-based Information System established by TBI professionals at the University of Miami (FL)
CeDRR Home Page - Center for Disability Related Resources - at the University of Arizona. You may also link directly to their page on "Information for instructors on teaching students with brain injury"
SSD Student Information Index
TBI Educational Considerations
TBI Support Group at Trinity College

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Statistical Data

Hurting heads Graph from USA Today (October 10, 1995 05:53 PM)
BRAIN Mostly in Italian, but has links to some English language resources, mostly to TPN.
TBI Stats

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Software / Computing

Neuro Page is a computer software reminder system for persons with brain injury.
Learning Fundamentals - featuring software from LocuTour Multimedia - Innovative software for speech - for use in cognitive rehabilitation
NEURX Computer assisted cognitive remediation programs for help in recovery after a traumatic brain injury.
Parrot Software - Cognitive Software
Checklists for Implementing Accessibility in Computer Laboratories at Colleges and Universities
Brain Train - Commercial cognitive rehabilitation software.
Stroke Family - Helps in-home stroke patients practice talking at home using their own computer. They have a free online demo of the program.
Bungalow Software - Software for Speech/Language Pathologists.
Cool Spring Software - Commercial page related to neuropsych and neuroscience.
Gus Communications Inc. - Speech Disorders, Augmentative Communication - Software
RehabNET - Articles & Software.
LAB Resources - 1995 Catalog - Laureate Software

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For Parents / Kids

A Voice in the Darkness: A young mother trying to stop the atrocities associated with Shaken Baby Syndrome has begun a web page and needs your help.
L&A Publishing - A terrific selection of tips, cards & booklets on brain injury in children and adolescents authored by Marilyn Lash
Able Generation -- Provides pediatric therapeutic furniture for children with special needs.
ThinkFirst - for KIDS! A great site about prevention and other "Brain Saving" ideas!
http://www.parentpals.com General information, weekly tips, games, a dictionary, links, and newsletters from therapists, teachers, and a psychiatrist for a variety of disabilities.
I Am Your Child is a very special website associated with the Rob Reiner ABC Prime Time Special "I Am Your Child" that aired on April 28th, 1997. The site contains vital information on the crucial first 3 years of life for a child and new understanding about how the brain develops..
http://www.kidsource.com/NICHCY/parenting.disab.all.4.1.html

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Surveys

The U.S. Department of Education's Office of Special Education Programs (OSEP) is conducting an online Special Education Consumer Survey. Please visit their site at www.osepplanning.org and let your voice be heard!

Visitors to this site have been invited to participate in a Case Western Reserve University Survey, designed to gather information about traumatic brain injury. While this survey is not officially sanctioned by the Brain Injury Association, we feel it may be of value in furthering our collective understanding of brain injury and it's effects on society. The Designers of this survey have assured us that survey participant's privacy will be respected. Participation is up to you. We are merely providing this link in the hope that the information may be of value to you and the brain injury community at large

If you would like to participate, please go to:
http://www.cwru.edu/UL/forms/braininjury.html

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